Friday, September 4, 2015

Rocking through recovery

So Bailey is beasting through her recovery milestones. She is off oxygen, got her IV out and is eating like a champ and maintaining good blood sugar levels. As of today there have been no apnea episodes since her surgery and no spitting up food. Her x-rays and ultrasounds look good on her head and abdomin. She passed her hearing test. Showed improvement in strength and flexibility with the physical therapist today. We met with the developmental pediatrician and she impressed him.
Today was just full of good news. She was exhausted from all the docs and tests but still managed to stay fairly happy all day.
We had one bit of concerning news today though. They are watching her heart closely as there may be an issue with narrowing of one of her arteries. They are not sure yet but she may need to visit the cardiologist to have things checked out.
They have started talking to us about what she will need after she goes home and besides a ton of appointments with various specialist, she will need in home therapy for awhile to help with muscle tone, flexibility and to ensure that she is eating well and that her shunt is doing what it needs to do, along with other stuff.
We are happy about all of this after you go home talk. The rumor is Sunday as long as she maintains her appetite, continues to control her temperature and has no more apnea episodes. We have a long way to go but being able to be home and get on a schedule and normalize to our life will make things much easier on all of us, I think.
I feel so blessed. God has heard and is answering all the prayers for my baby girl.

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