What a day!

Got up early today to pack up the room ahead of my discharge and so I could get to the NICU in time to catch her doctors and get test results. It was non stop all day between her floor and mine. Today she had physical therapy, neonatoligist, neurosurgeons x2, a pediatrician, ultrasound and xrays. If that wasn't a big enough day for her, she finally got to meet Uncle Will and Alex, and her Pa.
We had our first successful breastfeeding session, followed by an inability to repeat it for the rest of the day...
I ran between floors dealing with my nurses and Dr's  in between hers in order to get all cleared. I am exhausted.
The results of each test were good in their own way. The ultrasound was on her heart  and showed no issues. The xray was on her bowels and stomach. Whiles she is having eating problems, there is no physical cause of it. Another change in diet and temperature control experiments to keep her from freezing one minute and overheating the next. She is a little jaundice and the numbers there are creeping up each day so she may have to do the light thing.
The neurosurgeons think she needs a shunt but don't really think that it's hydrocephalus anymore. They think it's a similar sounding disorder that starts with a C but I can't remember the name. Treatment is the same but outcome and prognosis vary greatly. It's not as cut and dry and we had hoped, but no where near as bad as it could have been.
She was tired when she met her relatives today so they didn't get to interact with her, but she got to hear their voices and that's a good start.
Our good note of the day is that nothing new bad happened today  and while she did have some apnea episodes, she didn't turn purple all day.