2 months already!!!
So as yall know I prefer to end our posts with good news. That being the case we have to start this post with the bad news...
Bailey is having severe sleep apnea episodes. The alarms go off sometimes 3 times a night. Other times we go a week with no problems. We thought the apnea was being caused by the fluid on her brain. It is not... but that brings us to the good news.
Baileys brain is looking great. The neurosurgeon is very happy with yesterday's ultrasound. Her ventricles are within a normal range and she isn't showing any traditional signs of shunt complications.
This little girl has had an amazing couple of weeks and has learned some cool new things. She has learned the pincher grasp. Yall most likely saw her picture on FB for that one. She has started talking (babbling) to her toys and sings with me when I sing to her. She has learned to hold onto our shirts as she is falling asleep so that we cannot lay her down without waking her. She is doing the crab scoot on her playmat to get to toys she wants. And then there is the super amazing thing she did....
SHE ROLLED OVER!!! From tummy to back. She has only done it once but she worked really hard to do it and her PT was really surprised that it didn't scare her, but instead she looked happy and proud. She wanted to do something and worked hard to make it happen! :D
This next bit isn't really an accomplishment for her, but she is doing it way early. This little doll is cutting teeth. 5 of them. 4 on top and 1 on the bottom. They are actually visable. Not just chewing and drooling but 5 visable teeth pushing on the gums. This is making her a bit cranky but for the most part she is handling it very well.
It's amazing how much she has learned and accomplished since our last update. Her head control is improving greatly and she can hold her head unsupported now for short periods of time. She uses her head to track objects now and not just her eyes. This is especially cool because it's something healthy normal 2 month olds do, it's not common for a baby with her diagnosis to be able to do these things yet. There is usually a marked delay due to head weight and size which causes weakened neck muscles in early development. She is powering through it all to accomplish whatever it is she has her mind set to do at the time. The stubbornness is strong in this one. I love it now (might be in big trouble in a couple years lol) and she smiles so big when she does something she was trying to do. Doesn't matter if the goal was to touch a toy with her right hand (huge deal) or get me to pick her up, once she does it we get a huge, full face, ear to ear smile. Makes my day every time.
We are so excited and proud of her and so very grateful to God for blessing her with the strength and will to do all of this. We are encouraged and excited to see what she will accomplish next.
On top of accomplishments she finally got to meet her cousin, and her Great Aunt and she seems to have made a new friend at church (a sweet little girl about 2 months older than her). She really seemed interested and happy around all of them. She is such a sweetheart and so much more social than her Mommy and Daddy.
She is doing her PT twice a month and now they have added OT once a week to help with the order of operations for eating (she gets confused sometimes) and to help with the fact that she doesn't like having her bare skin touched. (Hmm aversion to being touched... might have gotten that from me... NAH) The exception to this is bath time. She loves baths. Her last bath I allowed water on her face and she loved it. I have got to get her swimming soon...
Oh and speaking of eating; This little one weighed in at 9 pounds yesterday! She is growing like a weed and has moved into 0-3 clothes. She is too long for newborns now.
2 month pics will be up in a separate post hopefully tonight or tomorrow depending on how much she wants to cooperate. I am trying for tonight as I don't expect much cooperation tomorrow as she has her shots first thing in the am.
